Dementia Research.
http://www.nhsdirect.nhs.uk/articles/article.aspx?articleID=124
Excellent Site with a clear explanation of the symptoms of dementia.
http://www.alzheimers.org.uk/pdf/i_drugsbehaviour.pdf
Guidelines on how drugs work with dementia.
http://www.rcpsych.ac.uk/mentalhealthinformation/olderpeople/memoryanddementia.aspx
Site highlights problems with forgetfulness stressing that we all forget! To quote "Our memories are remarkable - faster than the most advanced computer - but we still forget things. We usually forget those things we don't really need to remember.".
It then outlines common problems that affect memory such as depression, anxiety and physical health. Very clear and concise. Excellent site deserving of 5 stars.
http://www.rcpsych.ac.uk/mentalhealthinformation/olderpeople/drugtreatmentofalzheimers.aspx
Drug treatments explored.
http://www.labtestsonline.org.uk/understanding/analytes/apoe/glance.html
This website looks at the options of clinical lab testing.
To help confirm a diagnosis of Type III hyperlipoproteinaemia (also known as dysbetalipoproteinaemia), to evaluate a possible genetic cause of atherosclerosis, or to help confirm a diagnosis of late onset Alzheimer’s Disease (AD) in a symptomatic adult
When to get tested?
If your doctor suspects that your high cholesterol and triglyceride levels may be due to a genetically inherited disorder, or if you have xanthomas (yellowish raised patches) on your skin; also sometimes used if you have progressive symptoms of dementia and your doctor wants to investigate a possible cause of Alzheimer's Disease
Sample required?
A blood sample drawn from a vein in your arm
http://www.dipex.org/dementia
Website that looks at dementia from the carers prespective. This organisation has interviewed a number of people to find out about their experiences of caring for someone with dementia.
There is a helpful Video introduction by Jonathan Miller. A lot of time and energy has gone into this website making it a fantastic resource for people that have to care for people with dementia.
http://www.nice.org.uk/page.aspx?o=TA19
Looks at the use of drugs in dementia.
http://guidance.nice.org.uk/page.aspx?o=14427
http://www.nice.org.uk/guidance/CG42/publicinfo/pdf/English
Nice outline their guidelines.
Dementia: drugs used to relieve behavioural problems
(Alzheimer's Society)
Memory and dementia
(Royal College of Psychiatrists)
Alzheimer's and dementia
(The Royal College of Psychiatrists)
ApoE Genotyping
(Lab Tests Online UK)
Carers
(Carers UK)
Patient experiences - carers of people with dementia
(DIPEx)
Alzheimer's disease - donepezil, rivastigmine, galantamine (review)
(NICE)
Dementia
(NICE)
Links for clients.
Further reading
Your Memory: a user's guide. Alan D Baddeley. Prion £8.99
Helpful organisations
Age Concern: 1268 London Road, London SW16 4ER. Helpline: 0800 009966 (7 days a week, 7am-7pm) Tel: 020 8765 7200 Fax: 020 8765 7211
Provide information and advice to older people and their carers. Promotes a positive attitude to older people.
Alzheimer's Society: Gordon House, 10 Greencoat Place, London SW1P 1PH. Helpline: 0845 300 0336 Tel: 020 7306 0606 Fax: 020 7306 0808 Email:
info@alzheimers.org.uk
Care and Research organisation for people with Alzheimer's disease and other forms of Dementia.
Alzheimer's Society of Ireland: 43 Northumberland Avenue, Dun Laoghaire, Co. Dublin, Ireland. Tel: 00 353 1 284 6616
Gives support to families and provides information on Alzheimer's Disease and dementia.
Alzheimer Scotland: 22 Drumsheugh Gardens, Edinburgh EH3 7RN. Tel: 0131 243 1453; Fax: 0131 243 1450; 24 hour Freephone helpline 0808 808 3000; E-mail:
alzheimer@alzscot.org.
The leading Scottish charity working with, and providing support to, people affected by Alzheimer's and other forms of dementia.
Help the Aged: 207-221 Pentonville Road, London N1 9UZ
Tel: 020 7278 1114 (Monday-Friday 8am-6pm then answerphone)
Helpline: 0808 800 6565 (Monday-Friday 9am-4pm)
Fax: 020 7250 4474 Email: info@helptheaged.org.uk
Provides practical support and help for older people to live independent lives, particularly those who are frail, isolated or poor.
Carers UK: 20-25 Glasshouse Yard, London, EC1A 4JT. Tel: 020 7490 8818;
Fax: 020 7490 8824;
info@carersuk.org;
CarersLine: Tel: 0808 808 7777
Wednesday and Thursday 10am-12pm and 2pm-4pm.
To help anyone who is caring for a sick, disabled or elderly frail friend or relative at home.